For the second year in a row, I’m raising awareness for the Desmoid Tumour Foundation of Canada and I’m doing it by participating in Athina's Ride – a virtual cycling event running from now until July 10.
This particular event means a lot to me personally because the ride’s namesake is related to my brother-in-law. She’s a pretty amazing young lady and here is one of the many reasons why…
The event is named after Athina Merckx, who was diagnosed with desmoid tumours at just 13 years of age. Athina decided that she wanted to fight back against the rare disease, so she started up this fundraiser with her family.
I find this absolutely amazing. Athina has had to deal with surgeries, painful neurological conditions, and countless chemotherapy treatments. Despite all this, she’s somehow found the power to set aside her pain and help others. Talk about a remarkable (and inspiring) person!
So what are desmoid tumours? They are extremely rare, affecting 2-4 people per million each year. They are locally aggressive and can cause life threatening problems or even death when they invade vital organs. The tendency for recurrence makes treatment very challenging.
Because they are so rare, it means they are incredibly underfunded, which often leads to misdiagnosis and discrepancies in treatment. Donating will do wonders in helping to fund important research.
If you’re a cyclist, please join me by registering for the event.
And if you’re not a cyclist, please donate! 100% of the proceeds raised will benefit the Desmoid Tumour Foundation of Canada.
To make your tax deductible donation, please visit: https://www.athinasride.com/fundraisers/kiminglis